Daily Recap Take Three
The good and the not so good of today seem to go hand in hand - so I'll just list them all together....
- I got a call early this morning from the neurology department at Lurie's Children hospital letting me know they had an appointment open up with Dr. Wainwright, who is the one I really wanted to see. The appointment is for July 18th - which means we'd have to cut our vacation to the Dell's short and be sure to get the medical records from Loyola before that. We decided to try to get the records and take the appoinment - Dr. Wainwright appears to be very qualified (he's got the most letters after his name) and does specialize in pediatric stroke.
- So, this means we'll be cutting our annual Dell's vacation with Mike's family short. Right now, we're thinking I'll leave Tuesday night and Mike will stay with Quinn for the remainder of the vacation ('til Thursday). I feel bad for not giving Liam the entire vacation - I mean really guilty - but I could not pass up the chance to get an appointment that quickly and with this doctor. I'll try my best to make the trip to the doctor's exciting (we'll be taking the train) and then hopefully the next day I can think of something fun he'd like to do.
- It also meant I had to contact Loyola about getting the medical records quicker than promised. That was easy, the secretary from the neurology department at Lurie's gave me some advice, I followed it, and the supervisor from the records department at Loyola was very helpful as was whoever I spoke to from their radiology department. Yay! for nice people. I will be picking them up tomorrow and then hand delivering them on the day of our appointment.
- Liam's speech therapist made me cry when she said, "it's just so frustrating because I can tell he wants to have conversations and he just can't yet." I'm pretty sure I also heard her say, "We'll get there." And I did hear her say, "He has a good solid base and can ask for basic needs." To this my only response is that aphasia sucks.
- Liam seemed more tired today and there were many times I thought "aphasia sucks".
- The PT and OT that work with Liam agreed with me that we could go down to just one session a week and the speech therapist agreed to do four sessions each week instead of two. (This situation has almost everything to do with insurance, but the PT and OT both were raving about how well Liam was doing.)
- Quinn is figuring out ways to play with Liam again - and listening to their rough-housing and screaming has been awesome.
- Liam usually gets a brief break between therapy sessions and it gives us time to hang out together and have a snack.
Labels: aphasia, daily recap, frustrations, insurance, liam, parenting after a stroke, quinn, speech
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